May 17, 2012
Dosing day 2 of 4 in Cycle 2.
7:30 AM – Took my dexamethasone and acyclovir along with my vitamins at breakfast.
10:10 AM – Arrived at Lynn Cancer Center.
10:35 AM – Velcade injection given sub-cu by Karen. Another of the excellent nurses here at Lynn.
11:15 AM – arrived home with a Starbucks. Feeling tired as usual.
I had figured out earlier today that I really do have lost sense of taste for salt and sour. I mentioned this to the nurse, Karen, who said that this was a side effect of the Velcade. Strangely, I don’t see either hypogeusia or dysgeusia (the medical terms for low or no taste of one of the 4 usual tastes of salt, sour, sweet and bitter) listed in the side effects on the Velcade package insert. According to a reference in Supportive Cancer Therapy, July, 2004, cyclophosphamide can also have this side effect. I also did not find this listed on cyclophosphamide package insert. I will file an adverse event report (AER) with the FDA.
That’s scary. You’d figure it would be labeled for it if those side effects are so common. smh.
Hang in there, Dad. I love you.
Thank you for support, Kris. I love you too.
These side effects I complained about are actually minor ones caused by cytotoxic drugs. These are truly quality of life degradation, but the taste buds have come back during my last off week and I can expect them to recover again. I am thankful that the much more serious side effects have not shown up.