March 12, 2013

by kpw413

Today is Rm 4-3.

I met with Warren today and got my most recent results.

It’s interesting that on one hand my serum protein electrophoresis (SPEP) results, which is the usual way my M-Spike is measured came in at 0.7, and on the other my urine immunofixation test came in at no M-Spike detected. One of the things I learned recently is that SPEP is very inaccurate at levels below 1.0. Supposedly, a urine immunofixation is much more accurate. If that is true, then I might be characterized as being in complete remission. I didn’t get as clear an answer on this point as I should have. I will call Warren on this point tomorrow.

What Warren did say is that I am in a stable situation that he likened to Smoldering Myeloma or MGUS (monoclonal gammopathy of unknown significance). He said I could be in this place for years and could even be able to drop the steroid and/or the zoledronic acid before too long.

I still have issues of peripheral neuropathy in the soles of my feet (no recent issues in the fingers) which seems to vary up and down between about 5% of where I was at maximum to about 20%, where the sensation is borderline pain. Warren brought up Pomalyst (pomalidomide) as a possibility for me, if needed if the neuropathy gets out of hand.

All-in-all, I am very thankful to be where I am.

Thank you, Lord Jesus, for my healing.