May 2, 2013
Today is Rm 5-26.
And it will be the last that I will pursue this particular therapy.
As you know, I had discontinued the methylprednisolone already anyway; that was to have been replaced with dexamethasone. Well,
I saw Warren today who said he was shocked at my results:
My IgG has climbed to 3115, from last month’s 1420 – my original value was 2858.
My Kappa free light chains has climbed to 1308, from March’s 350 – my original value was 707.
My M-spike has climbed to 2.2, from last month’s 1.0 – my original value was 2.1.
At first it may seem that I am worse off, and going strictly by the numbers, this would seem to be true. However, there is more to staging than these numbers. Over the next week, I’ll have another PET/CT, a bone marrow aspiration, an update on any chromosomal abnormalities, and another 24 hour protein urea test. Then we’ll know where I am.
One thing is clear, Revlimid did not work for me – not at my median dose anyway.
I do have lots of treatment options that are open to me. Stem cell transplant may very also very well be in the cards, perhaps at the end of the summer. Need to try to get my numbers under better control first.
I will keep you all updated as I get more information. God bless you all!
Thank you, Lord Jesus, for my healing.
Wow. I am sorry that Warren was so far off in his assessment only 5 weeks ago that you were stable. Fear not. The Lord moves in mysterious ways.
I don’t know that it was Warren being off, or more as it is how differently myeloma behaves in each individual.
Hi Karl, I found your blog via the Myeloma Beacon’s blog aggregator. I am a 51 year old guy from Haddonfield, NJ. I was dx. with myeloma in 2011 and am treated in a clinical trial at the NIH in Bethesda, MD. I did eight cycles of carfilzomib, Revlimid and dex. I am now on maintenance and doing great, as are most people in my trial. Perhaps, you could get access to carfilzomib (Kyprolis)??? It may help you as it has been a miracle drug for those in my trial. Good luck with everything!
Thanks, Terry, and yes Warren has already mentioned Kyprolis (carfilzomib) as an option for me. Thanks also for your update.
Bob and I continue to hold you and Kathleen in our prayers. God bless you both.