October 26, 2013
by kpw413
Today is ASCT +9.
I apologize for not writing sooner. These last couple of I days I have been worn out with med’s, their side effects, and diarrhea.
Hi all, This is Kathleen. Karl is very tired. I think it also has to do with the fact that he has not been able to eat much of anything because of the sore throat, which is due to mucositis. His hair has started to fall out, so we shaved his head. We knew that this was a possibility. He looks very good with a bald head! So far the facial hair is still in tact. I told him that seeing him with no facial hair will be strange, I have never seen him with a clean shaven face in the over 37 years that I have known him!
Last night he ran a fever of 102.6. He tends to run high fevers when he is sick, which thankfully is not often. They gave him Tylenol and it was 98.6 this morning. He was back walking the hallway today. That is a good sign. The doctor will let him know on Monday when he can come home. I am so looking forward to that!!! I miss him so much during the week. He is right we do not do well apart!
karl&myeloma 
Thanks so much for the updates, I am due for transplant soon also & have found your blog very helpful. Good luck with recovery xx Justine in OZ.
Hi Justine – without a doubt, the worst is the affects on the GI tract from top to bottom; from oral cavity to colon. When your nurses say take ice, do it. When they say rinse your mouth, do it. May God be less you as you enter your journey. (Oz as in Wizard of, or a more simple, but similar derivation?)
I was very relieved to receive this post; the silence was really beginning to trouble me. Kathleen, thanks so much for filling us all in on Karl’s condition. I look forward to hearing when Karl can go home. I am sure that he is receiving excellent care at the hospital but I feel quite certain that his health will improve more quickly when he has the benefit of your loving physical presence with him all the time.
With much love to you both,
Marjie