March 2, 2014
Today is +137 days since my transplant – about 4-1/2 months. It’s also Transfiguration Sunday.
It’s been a long time since I posted and I never did give you the results of my M-spike testing. My number was 0.26, which is about 11% of the value I had before I started the carfilzomib & doxorubicin liposomal.
I reviewed these numbers with Dr. Brian Durie at the IMF Patient and Family Seminar this past weekend in Boca Raton, FL. He said that this puts me at very good partial response. And I do need to go on maintenance therapy. He thought the idea of a carfilzomib maintenance made good sense. He suggested 1 dose every 2 weeks.
So I shall take this up with Krishna, James (Berenson) whom I will speak with later this month as well as James Hoffman (a myeloma specialist at Sylvester recommended by Krishna) and, of course, Warren.
All looks very good.
Thank you, Lord Jesus, for my healing and for those for whom we pray, Victor, Barbara, Herma, Berris, Frank, Richard, and Joe.
Don’t worry so much about the M Spike number. I went on Revlimid for maintenance and never reached CR until 10 months out from my transplant. Congrats on your success!
Thank you Scott. Your comment helps a lot.