New Note May 8, 2019: I have updated information below where needed and appropriate.
New Note June 13, 2015: I have changed the name of this blog from Karlsmyeloma to Karl&Myeloma in order to disown the myeloma that heretofore I had claimed as mine. It is not mine; it is not from God. It is the work of the devil and I do not own it and I reject it and I want it gone from my body.
Hi! Allow me to introduce myself: I’m Karl. I am Kathleen’s husband for 41 years and father of two grown children, Kirsten and Kristofor. I am active in the Episcopal Church. I am a scientist having graduated with a BS degree in chemistry from Stevens Institute of Technology and a MS degree in pharmaceutical marketing from Long Island University Arnold & Marie Schwartz College of Pharmacy. I’ve worked in the pharmaceutical industry most of my life and I understand the science of drugs used in cancer therapy.
I was diagnosed with multiple myeloma on March 23, 2012 and the purpose of this blog is to provide a place for me to share my experiences and history with this disease.
My approach is currently six-fold (I am open to others): I am being cared for by
- a hematologist oncologist – Warren
- a family physician – Leslie
- a chiropractor – Neil,
- a massage therapist – Margot,
- equally importantly, members of The Order of St. Luke the Physician from the Chapel of St. Andrew especially Emily Nell, Cheryl, Lillian, Catherine, Liz, Marcy, Danielle, Deacon Faye and Fr. Charles – who are using God’s healing powers through the saving grace of Jesus Christ,
- my sister Marjie and her husband, John, and
- my most loving, most supportive, most everything wife, Kathleen and my two children, Kirsten and Kris.
You’ll see these names come up in my posts. I’ll first go back and put in some of the information leading to my current status and then continue from there.
For those of you new to this blog, it starts on February 6, 2012, when I first noticed some pain in my right shoulder.
HI Karl. My childhood friend, Angela Sutterer, sent me this link when she learned my mom was just diagnosed with multiple myeloma. At this point, we have no idea what to expect so your blog is helpful. Thanks for taking the time to write it. God Bless,
Thank you, Stephanie. Please also check out the International Myeloma Foundation and Myeloma Beacon. Both have websites that are quite useful. I wish all the best for your mom!
I just had a quick question about your blog – if you could email me back when you get a chance I’d greatly appreciate it.
Yes, Susan, what is your question? Karl
I wish you the best with your transplant. I was diagnosed in September of 2011 at 47. I had my transplant in june of 2012 and I am now in complete remission. I KNOW that the good Lord has graciously blessed me with this response to treatment.
I will be praying for a smooth journey during your treatment and that God will bless you in a mighty way with complete healing.
Scott in Ohio
Thank you, Scott. One of the things I have learned as I explore Healing Ministry, is that a positive attitude and KNOWING that I will have complete healing, are essentials to obtaining just that. It means so much to have your comments from someone who has also been through all this. May God bless you! Karl
You are very welcome.
My wife was diagnosed in 2010, me in 2011, my son-in-law in 2012 and shortly after my wife again with yet another form. All blood cancers but different types. We are all now in complete remission.
My wife and I had a music ministry before diagnosis and now have powerful testimonies to share along with our music. The storm we both went through brought us closer to God and he became more real to us than ever before.
No matter how hard the rain, how high the waves or how hard the wind blows, he is STILL God and he will calm EVERY storm!
Prayers from Ohio!
I am going to Sylvester today for the Catheter. I have been going to Deerfield for neupurin shots. My friend Don emailed me your site. I do know where Sea Watch is! Drive by it all the time. I will be on the 4th floor too. The cell collection is supposed to start Monday. Praise the Lord that yours went so fast. I was curious about your “crash bag”. I have been admitted 3 times on the 2nd floor for chemo since Aug 31st and was in room 201 twice. I basically moved in since I was there for 4-5 days. Did you have to be in Miami at 7:00 for the collection process? Lots of questions, sorry. I can’t finish reading everything – got to get ready to go to Miami for the shot and catheter. Thank you for the information. God has blessed you, and your blog has been a blessing for me. Thank you. Jan