One man's experience with multiple myeloma

Tag: healing

March 24, 2015

Today is ASCT +525 days since my transplant.

It has been 5 months since I last posted.  I meant to post in January and just never made it.

In January, I received the results of my latest set of blood tests and the only remarkable point was that my M-Spike was no longer “not detected” it had climbed to 0.2.  Of course, I’d have preferred that it was still not detected, but in and of itself, not a number to be worried about.

Today I received the results of my latest blood tests and it seems that there has been some progression.  My M-Spike is now 0.5 and my IgG has climbed to normal from below normal while my IgA and IgM dropped to below normal, and my Kappa Free Light Chains are now high as is the Kappa/Lambda ratio.

Warren has scheduled me for a skeletal MRI and a PET/CT scan for this Thursday afternoon to ensure that there is no bone damage going on.  It’s still too early to use the relapse word and we remain watchful.

I’ll let you know the results of the scans when I get the news.

In the meantime, I continue to pray for Bob, Carol, Wayne, Diane, Dianne, Ken, Darla, Pete, Sylvia, Nicola, Berris, Nancy, and Barbara.

Thank you, Lord Jesus, for my healing and the healing of those I pray for.

October 15, 2014

Today is ASCT + 365 – 1 year!

My transplant doc, Krishna, was ill and not able to make my appointment. Instead I met with Kate, one of his nurse practioners. I had some questions that she seemed to be able to answer well concerning my set of recent results. In short, I’m in remission! Praise be to God!

Whether I’ll be needing any other tests or what the schedule of follow up testing will be is to be determined. I meet with my regular hemotologist/oncologist, Warren, on Tuesday to start the process of working out a plan.

In the meantime, I feel great.

My only therapy post transplant has been curcumin phytosome which is curcumin complexed with phosphatidyl choline to make it bioavailable. It certainly is safe enough. I am happy to take this for the rest of my life if it means I don’t need chemo or transplant again.

This evening, I listed to a Cure Panel program on bone issues in myeloma. I learned that my experience of seeing my lytic lesions and plasma cytoma disappear in 6 months is rare. I can only attribute it to the power of prayer and God’s healing grace.

I’ll let you know more after my meeting with Warren.

My healing prayers go out for Wayne, Sylvia, Nicola, Ken, Joe, Berris, and Barbara.

Thank you, Lord Jesus, for my healing.


July 19, 2014

Today is ASCT + 276.

As I lay in bed trying to fall back to sleep, I find myself thinking about the nature of healing. Why is it that some of seem to receive healing and others not? Surely, in my own case, it is only through the grace of God that I am where I am.

I read, with a yearning to help, another myeloma blogger (ejbones) who lives in London, who is very young, only in her 30’s, who is going through so much. She has been through ASCT, complete remission, and relapse all in less than a year, and is again going through a cocktail of therapies. I have been considering how to comment to her.

How do I reach her without being preachy? Who am I to understand how she feels when she is so young with this disease? It seems her depression is totally understandable. Someone at her age should be enjoying life without having this beast weighing her down.

EJ, I pray that the peace of God may uphold you and lift you up from all the negative places you have been, and that the grace of God fill you up with healing and give you strength to go on in your therapy, and that your meds reach every cancerous cell and destroy them, and that God replace every cancerous cell with new, healthy cells, so that you may experience life as God means for you to experience life, through our Lord Jesus Christ and the power of the Holy Spirit, Amen.

Thank you, Lord Jesus, for my healing.